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Care for Children with Special Needs
Parents of children with special needs go through some steps in caring for their child. First is DISBELIEF. Who would have thought that their child has special needs? Who would have thought that their child would be diagnosed with either Autism, ADHD, mental retardation or learning disabilities. They ask, “God, why does it have to be my child?” Alongside disbelief is DENIAL. Parents see nothing wrong with their child—their child might just have more energy, or their child may just have a slower rate of understanding than other children their child’s age. They suddenly ask questions—why do children develop at different paces? Why are children different from one other? Why do children have their own specific talents and interests? Then comes GRIEF. Yes, parents grieve—they grieve on the loss of their dream for their child who can never be the doctor they wanted their child to be. They grieve because no matter how much treatment or intervention is given to their child they feel that their child may not be capable of living a life like others. They have the nagging question, “What would happen if we die (first)? Who would take care of our child?”—questions too difficult to answer. Time flies. Parents cope differently. Soon comes ACCEPTANCE for parents who are able to spring into action immediately following their child’s diagnosis—scouring the web for information, devouring every information they get related to their child’s problems, and going to therapists who can help them and their child. They look for special schools and therapy centers. They keep all necessary documents. They take down notes. They listen to the experts. They even attend seminars. In fact, some even become advocates for the cause that they are fighting for. They spare no time and expense in getting help needed for their child. After all, money is nothing if their child won’t be able to live a “normal” life—even if that money is scarce. Some parents, on the other hand, wallow in grief, having a hard time accepting the diagnosis. Chances are, they seek another doctor’s opinion, and another, and another, hoping to hear that their child has no problem. They feel the need to observe their child to ascertain later if there really is a problem. More often than not, they ignore the doctor’s advice for important intervention programs that would help their children cope alongside typically developing children. What happens then? The child moves further away from the supposedly performance age, unable to perform at the expected level of performance. Why? Because the child has not received any help at all, and this is compounded with other symptoms or behavior that have developed over time. As a result, more intensive intervention is required. Don’t Lose Hope The journey through this is not without bumps and humps. Along with this journey are stressful and hopeless moments, tensions between and among family members, the feeling of reaching the end of one’s wits, losing patience, and feeling more despair than joy. Yes, there are triumphant moments, as well as leaps over the bumps Parents should keep their sanity intact, not giving up. God does not give challenges that cannot be overcome. In the end, they become better persons, having faced and survived a storm of their own. Fighting a battle that involves their child is not one where parents should back down—it is a battle worth fighting for. Post first published here: http://parenting.pinoymomsnetwork.com/
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This intel was contributed by julie
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May, 2012
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